WHITEPAPER


IMPROVING SOLVE RATES IN RARE DISEASE RESEARCH WITH HIFI LONG-READ SEQUENCING

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Up to half of rare disease cases stay unsolved after standard testing.


This whitepaper reviews the published studies that ran HiFi long-read sequencing in rare disease research — including cohorts short-read testing had left unsolved — and reports what each one found.


Your download includes:


Six featured cohort studies — from the pan-European Solve-RD program to pediatric and neurodevelopmental cohorts


Twelve further studies — multi-center evaluation, analytical validation, chromosomal rearrangements, inversions and retinal dystrophies


A variant-class comparison — what one HiFi genome detects, set beside karyotype, microarray, exome and short-read genome approaches (Table 1)


Assay consolidation — where one genome did the work several targeted assays used to do


Methylation from the same reads — epigenetic information with no additional library prep


The rare disease toolbox — the analysis tools and methods the studies used (Table 2)

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